“’We were thrown into this world of dementia and we became front-line carers in this world we knew very little about.’”
Lee Pearse has a modern-day crusade: To reduce stigma and raise awareness of dementia in the UK.
Lee’s mother, Valerie, was diagnosed with vascular dementia at age 59, and then re-diagnosed with frontotemporal dementia. Lee and his brother helped their father care for their mother at home, but as her disease progressed, the family realized she needed 24-hour care and made the difficult decision to place her in a care home.
Now 40, Lee considers it his life’s calling to help people understand the realities of dementia, seeing a need for a “foundation of understanding” to support and educate caregivers who are too often unprepared for the diagnosis and feel isolated. He has created the Valerie Foundation for dementia support, been named a Champion of Alzheimer’s Research UK, and written, produced, and directed My Name is Rod
, a documentary about his father’s journey while caring for Valerie.
Lee believes that accepting dementia as a way of life for many people will help drive conversations, communities, and ultimately funding for research. Find out more about Lee’s mission here
to help you provide high-quality dementia care.